Our son has always had unusual sleeping patterns. He moves around a lot. He sits up frequently and drops over to a random side. He snores and appears to have some trouble breathing at times. He recently turned four, and his Down Syndrome pediatrician suggested a sleep study to determine if he had some form […]
Down Syndrome Sleep Study Read More »
IEP was not a term that was familiar to me before I had a child with a disability. Even then, I didn’t hear about the word until our son was getting ready for school. Suddenly I was hearing the word all the time. And it was always spoken in very serious conversations. It was one
IEP – Individualized Education Plan Read More »
Parents Beginnings of Swimming Olma: You know what they say about our parents? They make their children achieve their personal dreams. I think it is true sometimes. Like my mom, she wished she could play the piano but her father thought it was an unnecessary skill. So, guess what? My mom made me take piano
On Valentines Day, 14th February 2017, I took a pregnancy test. It was positive. I was happy but I didn’t want to raise my hopes. We had two miscarriages previously, so this was my third pregnancy. I was nervous. Bob and I kept our pregnancy quiet for a while. We didn’t tell anyone until we
Reading to Our Child Read More »
Alex’s special education services were all virtual. His speech and language therapist meets with him twice a week for 30 minutes to provide speech services. Once a week the special education teacher joins their sessions. She provides services to meet Alex’s IEP goals under developmental delay category. Thanks to Bob, during Alex’s first IEP he
First Real Conversation Read More »
Last week was one of Alex’s first successful restaurant experiences. And by a successful restaurant experience I mean that he basically stayed seated in his chair and ate his restaurant meal unassisted. He is 3 years and 8 months old. Over the past year we didn’t go to any restaurants because of Covid, so to
Successful Restaurant Experience! Read More »
These are the books that Alex read many times. If you notice we didn’t have any Valentine-themed books. We read a few of those books but he never really liked them. I wrote a short summary for each book and shared about Alex’s interaction with it. So here is the list of books. The Pout,
Alex started struggling to walk around age 2. And we were thrilled. It was hard to believe that he could almost walk. As you all might already know, getting Alex to walk was an involved process at every step of the way. Children with Down Syndrome have “low muscle tone,” so virtually every physical stage
One evening, we were eating our dinner. I stepped out of the dining room to get something from the kitchen. I was gone for approximately 8 seconds. Then, when I came back all the spaghetti was on the floor and was splattered on the walls and ceiling. I was astounded. How could that be possible?
I spend a few minutes of every day looking through Facebook posts of Parents with Children with Down Syndrome. I’m genuinely happy for families when I read about amazing things like a young man with Down Syndrome completing an Ironman Triathlon or even more routine things like children meeting milestones. I know how great it
Comparison is the Thief of Joy Read More »
