Our son has always had unusual sleeping patterns. He moves around a lot. He sits up frequently and drops over to a random side. He snores and appears to have some trouble breathing at times. He recently turned four, and his Down Syndrome pediatrician suggested a sleep study to determine if he had some form […]
Down Syndrome Sleep Study Read More »
IEP was not a term that was familiar to me before I had a child with a disability. Even then, I didn’t hear about the word until our son was getting ready for school. Suddenly I was hearing the word all the time. And it was always spoken in very serious conversations. It was one
IEP – Individualized Education Plan Read More »
Last week was one of Alex’s first successful restaurant experiences. And by a successful restaurant experience I mean that he basically stayed seated in his chair and ate his restaurant meal unassisted. He is 3 years and 8 months old. Over the past year we didn’t go to any restaurants because of Covid, so to
Successful Restaurant Experience! Read More »
Alex started struggling to walk around age 2. And we were thrilled. It was hard to believe that he could almost walk. As you all might already know, getting Alex to walk was an involved process at every step of the way. Children with Down Syndrome have “low muscle tone,” so virtually every physical stage
I spend a few minutes of every day looking through Facebook posts of Parents with Children with Down Syndrome. I’m genuinely happy for families when I read about amazing things like a young man with Down Syndrome completing an Ironman Triathlon or even more routine things like children meeting milestones. I know how great it
Comparison is the Thief of Joy Read More »
